Photo: Kurtis + Sara Cenatiempo

WELLNESS

Help Aria, a 4-Year-Old With a New Rare Heart Condition

Four-year-old Aria Cenatiempo was born with Tetralogy of Fallot. Here's how you can help her family find a rare medical answer and support her care.
Photo: Kurtis + Sara Cenatiempo

At four years old, Aria Cenatiempo has already faced more than most of us will in a lifetime, and she has done it with the kind of light that fills a room. Born with a serious congenital heart condition, this brave little girl and her family are now searching for a rare medical answer, and the good news is that there are simple, meaningful ways the community can help. Sometimes the person who can change everything is closer than we think, and a single share could be what connects this family to exactly the help they need.

Four-year-old Aria Cenatiempo was born with Tetralogy of Fallot. Here's how you can help her family find a rare medical answer and support her care.
Photo: Kurtis + Sara Cenatiempo

Aria’s Story

Aria was born with Tetralogy of Fallot, a rare congenital heart defect made up of a combination of heart abnormalities that affect how blood flows through the body. Children born with it typically require open-heart surgery, and many go on to live full, joyful lives, but the road can be long and complicated.

For Aria, that road has taken an unexpected turn. Following a heart valve replacement, she has experienced a rare complication in which a LAD coronary artery became compressed, a situation her family notes is uncommon enough that very few specialists have encountered it firsthand. Now, they are on a mission to find someone who has.

How You Can Help Aria

There are three simple ways to make a difference for Aria and her family, and every one of them matters.

First, they are searching for a pediatric cardiologist or cardiac surgeon who has actually seen a LAD coronary artery become compressed after a valve replacement. It is rare, but someone out there has treated it. If that person is you, or if you know exactly who it is, the family asks that you reach out to Sara Cenatiempo directly on facebook.

Second, you can donate. Every contribution, no matter the size, goes toward Aria’s surgery, medical care, and the mounting costs her family is facing. Their fundraiser is live now at Aria’s GoFundMe.

And third, if you are unable to do either, please simply share her story. As the family beautifully put it, the doctor this family needs may be sitting in someone’s friends list right this very moment. A share costs nothing and could change everything.

Aria is a joyful, spirited little girl who deserves every chance to grow up healthy and happy. Together, our community has a real opportunity to help make that happen, so please consider sharing Aria’s story today.